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Living with Cystic Fibrosis. Follow my son's life with CF, and learn some CF "hacks" along the way.

Living with Cystic Fibrosis

Mauli Ola is a non-profit organization that provides free surfing experience for cystic fibrosis patients. Our cystic fibrosis patients were provided with a surf board, wet suit, and one-on-one professional surfer as an instructor for a day. cystic fibrosis patients who have never surfed are surfing, standing up on boards, by the end of the morning. #surfing #charity #cysticfibrosis

Mauli Ola is a non-profit organization that provides free surfing experience for cystic fibrosis patients. Our cystic fibrosis patients were provided with a surf board, wet suit, and one-on-one professional surfer as an instructor for a day. cystic fibrosis patients who have never surfed are surfing, standing up on boards, by the end of the morning. #surfing #charity #cysticfibrosis

This design is inspired by a logo Alexis Foster created in honor of her baby sister who has Cystic Fibrosis. This logo is in the process of being copyrighted so she can start making a difference in the CF community!

TOBI podhaler. Wonderful innovation for the Cystic Fibrosis community. A breathing treatment that once took 40 minutes now only takes 3 minutes to complete. This has made my life so much easier.

Wonderful innovation for the Cystic Fibrosis community. A breathing treatment that once took 40 minutes now only takes 3 minutes to complete. Ory tried it but it caused shortness of breath and he got sick.

Cystic Fibrosis Rose Bracelet, a cute way to support my brother and late aunt <3

Cystic Fibrosis Rose Bracelet, a cute way to support Cf

New Student-Developed Cystic Fibrosis App Makes Breathing Therapy a Game

New Student-Developed Cystic Fibrosis App Makes Breathing Therapy a Game

Cystic Fibrosis is a cause near and dear to our hearts. More and more, patients are living longer and need additional care. This design helps support that care and research for additional treatment.

Not a Wasted Breath: Living Fearlessly with Cystic Fibrosis  Do I want to read this? I don't know.

Not a Wasted Breath: Living Fearlessly with Cystic Fibrosis Do I want to read…

Autosomal Recessive Inheritance - Maple syrup urine disease (MSUD) (Also applies to  Cystic Fibrosis inheritance)

Cystic Fibrosis - a genetic infographic courtesy of Genetic Science Learning Center (University of Utah).

The perfect rolling  cart from Ikea for the VEST machine for those with cystic fibrosis. $49.99, colors are grey or blue and it easily holds the machine, vest, tubes, nebulizer and chambers as well as an extension cord.  Stylish, affordable and had wheels! Make CF mean CURE FOUND :-)

This is an awesome find! The perfect rolling cart from Ikea for the VEST machine! It easily holds the machine, vest, tubes, nebulizer and chambers as well as an extension cord. Stylish, affordable and had wheels!

May is Cystic Fibrosis Awareness Month! :) (Want to help? Start a CF pinterest board! Pin something CF related every day this month! Join me! -A.L.)

My art teachers son just lost a battle with CF today and I can't even fathom into words the pain she and her family Must be going threw.